Better Than Dead

Random quote of the day:

“There are a thousand thoughts lying within a man that he does not know till he takes up a pen to write.”

—William Makepeace Thackeray, The History of Henry Esmond

 

Disclaimer: The views expressed in this random quote of the day do not necessarily reflect the views of the poster, her immediate family, Siegfried and Roy, Leonard Maltin, or the Mormon Tabernacle Choir. They do, however, sometimes reflect the views of the Cottingley Fairies.

So many caregiver conversations I have begin with, “I love my [Mom] [Dad], but…” Caregiving is a constant dance between responsibility, exhaustion, love, frustration, compassion. Unless you’re one of those lucky individuals not carefully raised with a guilt complex, guilt always comes snipping at your heels. Wanting it to be over, dreading that it will end, knowing there is no happy ending, wanting to salvage something out of this life for yourself, wanting to do the best you can, give all you can, for the one you love…

Conflicts abound.

The Caregiver Action Network estimates there are 65 million family caregivers in the U.S. If you’ve got some money, you can hire people to pick up the slack. I’d wager that most of the people doing this job do not have that kind of money. Most of us have to suck it up and do the hard day to day stuff ourselves.

I sometimes see people like Amy Grant or Katie Couric get on national TV to pat themselves on the back for hiring people to take good care of their aging parents—and la did da! la di da! what a meaningful and enriching lesson we’re learning from all this. I have to admit, it kind of…fills me with rage, frankly. They have no idea what it’s like for the majority of us, the lack of resources available. There’s not a lot of meaningful enrichment going on for those of us slogging along.

But that rage? It doesn’t do any good. It makes the job of taking care of a loved one more exhausting. Part of the learning process of doing this work is knowing when to cut your losses. You have to let go of things that deplete your energy because you need to put that energy in the right place—which is taking care of a frail human being (or two, or more) who depend on you. You have to save your energy for the physical chores, for the emotional support they need, for those tiptoe movements of life in your own self.

This is what life is. Hard choices, irreconcilable desires. Most of my life I stepped along a privileged path without being confronted by these dilemmas. Oh, I had problems, bad things had happened to me. But I failed to recognize that sometimes life is a St. Vitus’ dance: you have no choice about the movement, you just have to keep going until…things end.

It’s the dance invisible, the dance towards and away from death. But also of life, in all its hidden twists and turns, its crazy syncopations, its unknown music which takes you unaware.

I dance the dance invisible. I am not alone. It just feels that way sometimes.

Random quote of the day:

“Morals have given rise to charity and pity, two dumplings that have grown like elephants, planets, which people call good. There is nothing good about them. Goodness is lucid, clear and resolute, and ruthless towards compromise and politics. Morality infuses chocolate into every man’s veins.”

—Tristan Tzara, dada manifesto

Disclaimer: The views expressed in this random quote of the day do not necessarily reflect the views of the poster, her immediate family, Siegfried and Roy, Leonard Maltin, or the Mormon Tabernacle Choir. They do, however, sometimes reflect the views of the Cottingley Fairies.

Random quote of the day:

“To know yourself is the first task. Any measure of control you gain over yourself has a positive effect on the world around you.”

—Caitlin and John Matthews, Walkers Between the Worlds

 

Disclaimer: The views expressed in this random quote of the day do not necessarily reflect the views of the poster, her immediate family, Siegfried and Roy, Leonard Maltin, or the Mormon Tabernacle Choir. They do, however, sometimes reflect the views of the Cottingley Fairies.

Random quote of the day:

“Courtroom – A place where Jesus Christ and Judas Iscariot would be equals, with the betting odds favoring Judas.”

—H. L. Mencken, A Mencken Chrestomathy

 

Disclaimer: The views expressed in this random quote of the day do not necessarily reflect the views of the poster, her immediate family, Siegfried and Roy, Leonard Maltin, or the Mormon Tabernacle Choir. They do, however, sometimes reflect the views of the Cottingley Fairies.

Random quote of the day:

“You’ll have a moonlit night if you write that on the mill dam a piece of glass from a broken bottle glittered like a bright little star, and that the black shadow of a dog or wolf rolled past like a ball.

—Anton Chekhov, letter to his brother, May 1886
(tr. Avrahm Yarmolinsky)

(This piece of writing advice is often condensed, rearranged, and misquoted as: “Don’t tell me the moon is shining; show me the glint of light on broken glass.” See the Quote Investigator column on this at: http://quoteinvestigator.com/2013/07/30/moon-glint/ )

 

 

 

 

 

 

 

 

 

 

Disclaimer: The views expressed in this random quote of the day do not necessarily reflect the views of the poster, her immediate family, Siegfried and Roy, Leonard Maltin, or the Mormon Tabernacle Choir. They do, however, sometimes reflect the views of the Cottingley Fairies.

Random quote of the day:

“[The past] was not behind us, never truly behind us, but under us, holding us up, a foundation for all that was to come and everything that had ever been.”

—Laura Lippman, In A Strange City

 

Disclaimer: The views expressed in this random quote of the day do not necessarily reflect the views of the poster, her immediate family, Siegfried and Roy, Leonard Maltin, or the Mormon Tabernacle Choir. They do, however, sometimes reflect the views of the Cottingley Fairies.

Mar 12
I love this man: http://ontd-political.livejournal.com/10981269.html 

Mar 13
Some days I miss hanging out with my characters so much it hurts. Some of them were running though my mind a lot today. Maybe I’ll be able to use all this to write a really profound book one day. Either that, or croak early.

Mar 16
Always glad to see Jenny McCarthy slammed for her unscientific and harmful beliefs on vaccines. Can we start on Gwyneth Paltrow now? Oh wait, she’s just criminally elitist and stupid, not a murderer.

Mar 23
I feel bad that you feel badly. Perhaps your doctor should examine your hands.

Mar 24
The dream factory isn’t dead: it keeps supplying me with good ideas I haven’t got time to write.

Mar 25
I like the idea (from The Caliph’s House by Tahir Shah) that the Jinns decide whether or not we’re going to believe in them.

Mar 28
A working mom’s open letter to Gwyneth http://nyp.st/1eVO22J 

Could this woman be any more blinkered and entitled? Yeah. I don’t think she’s bottomed out yet.

Mar 28
My cat is sad because she wanted to seek enlightenment but all the other cats cared for was tuna.

pic.twitter.com/fQMG2efc5w

Mar 29
Louis CK: “I got a white noise machine. You know what that is? It’s a machine that allows white people to sleep.”

Apr 3
Pro-tip: Don’t ask an animal activist the old joke question, “Do you know how to get down off a duck?” You’ll never get to the punchline.

Pro-tip2: Use a ladder.

Apr 3
Duty vs. personal aspirations, that’s my conflict. Most days sublimated, some days excruciating.

ETA: Love is also in the mix, making things more confused.

Apr 4
Walmart’s false argument: RT If Walmart Paid Employees a Living Wage, How Much Would Prices Go Up? http://www.slate.com/articles/business/moneybox/2014/04/walmart_living_wage_if_the_company_paid_its_employees_more_how_much_would.html …

Apr 4
I believe in science and I believe in spirit. This doesn’t have to be a dichotomy or a contradiction. It just is.

Apr 4
While eating chips I read, “Every bite of food you eat alters your daily metabolism, electrolyte balance, and proportion of fat to muscle.”

Apr 7
And my mother turned 93 today. Happy birthday, Mam!

Apr 8
Dear Nekkid Girl Posing In An Abandoned Warehouse: it isn’t arty. You’re still just a nekkid girl.

Apr 10
Penn & Teller decimating the anti-vaccination brigade in under two minutes. http://youtu.be/lhk7-5eBCrs 

Apr 10
When did “alone” become synonymous with “lonely”? The two are quite distinct.

Apr 11
The transport company that takes Mom to dialysis two days a week just called to say that in May they’ll charge $70 a ride not $30. I don’t know what we’re going to do. We can’t afford that, and the alternative is me missing a lot more work.

Apr 13
Potentially hopeful news from the social worker yesterday about transportation for Mom to dialysis. Don’t want to say much for fear of jinxing.

No, I never engage in magical thinking, why do you ask?

Apr 14
Let go and let the Universe. I now have three possible solutions to my mother’s dialysis transportation problems.

Apr 15
I’m so old I remember having to get up and walk over to the TV to change channels.

Apr 18
Me at the cafeteria: This morning I need a whisky muffin. Hold the muffin.

Apr 23
A hornet’s nest found in an abandoned shed. The head is a part of a wooden statue it fused with.

pic.twitter.com/rL1xLzXLLB [Warning: may cause the wiggins.]

Nature abhors a vacuum.

Apr 24
3 judges sided with Verizon and decided to let ISPs censor the internet. Tell the FCC to restore net neutrality! http://cms.fightforthefuture.org/tellfcc/ 

Apr 24
Maybe I should do as my spam suggests and get myself a Russian Bride. Of course, I might not be able to fulfill all her expectations. Too bad they don’t have a green card program for “domestic assistants.”

Apr 25
What Hitchens got wrong: Abolishing religion won’t fix anything http://www.salon.com/2013/12/07/what_hitchens_got_wrong_abolishing_religion_wont_fix_anything/ …

Apr 29
Avoidance seems to be the chief management style of many organizations.

Apr 30
I’m thinking of starting a company called Clusterf*cks R Us. Probably wouldn’t get much business, though.

Apr 30
Okay, maybe I’m a little panicky over how much I have to do before my surgery in two weeks. And maybe the surgery, too. And the recovery.

A little.

Verging on a lot.

May 1
My spam keeps sending me a “Notice to Appear.” I think I’ll send my Russian Bride instead.

May 1
The night air is full of jasmine crushed into luscious fragrance by the first heatwave of the year.

May 2
Even the most shining hero is a human being with feet of clay. If we’d just remember this, there would be less anger in this society.

May 3
The same government agency which made us prove my mom was married to my dad and that he had died needs us to prove it all over again 20 years later. Different department, you see. Apparently they’re unable to communicate with one another. Dealing with government agencies is a big component of caregiver fatigue. It wouldn’t be so bad except my dad’s death certificate has gone missing and L.A. County takes 4 weeks to get a new one.

May 3
Or maybe I won’t have surgery in 2 weeks. If I put it off this time, it will be 2 times.

May 4
Mom is home from the hospital. She’s doing okay.

May 6
I wonder if the superbuff guy on the cover of so many romance novels who’s face disappears past the top of the cover has a really ugly mug?

Or if, yanno, it’s supposed to be some artistic sh*t.

Or if, yanno, it’s so women can fantasize any man they want?

May 6
Abandoned mill from 1866 in Sorrento, Italy: Oh, the stories this conjures up!

pic.twitter.com/kHgXAnyRVV

May 6
I think “narcissistic loony toon” sums M. Lewinsky up quite nicely. She has wedged her way back into the public eye just like that string was wedged between her cheeks.

[Fortunately, it was a brief appearance and quickly faded from the public’s notice.

May 7
The Red Queen still rages. “The trick is not becoming a writer. The trick is staying a writer.” —Harlan Ellison

pic.twitter.com/C0YNAXzclI

May 9
My surgery has been officially postponed. Mom had some minor setbacks that were major enough to warrant postponement.

I’m deeply ambivalent. I don’t fancy being a cripple for the rest of my life, however.

I think I’ll change my middle name to Ambivala.

May 11
THIS. Roz Chast on people wanting to live to be 120: “I feel like these are people who don’t really know anybody over 95.” http://n.pr/1nCUcrx 

“The reality of old age,” she says, is that “people are not in good shape, and everything is falling apart.”

Everyone says, “It’ll be different for me. I’ve taken good care of myself.” But you NEVER know what life will throw at you.

That’s life’s sweet and cursed mystery.

“When you’re young you look at old people & just think they’re old people. It’s only later that you properly realise they’re ex-young people.” —Tom Cox, Twitterfeed 5/10/14

Everyone thinks they will be 30 until they’re 75. Until they hit 40, I guess.

May 15
RIP Lady Mary Stewart. You filled my Young Adulthood with many happy hours.

May 15
Ironic Twitter Juxtaposition: http://twitpic.com/e3vvhy 

May 17
Ironic or psychosomatic? I wrenched my knee on the very day my surgery would have taken place. Not the one that would have been operated on, either. My other knee which has as many problems and will need its own surgery someday.

May 21
Ironic Twitter Juxtaposition: http://twitpic.com/e4drq1 

May 21
I’m at the bargaining with the Universe stage. That can’t be good.

May 22
My friend and I were just saying that the next Survivor should feature an all-geriatric group of contestants.

“If your team all successfully completes your challenge, you will be given your meds as usual. If not…”

And complaint marathons to see who lasts the longest. That competition is expected to go on for days.

May 22
I can hear a train whistle every once in awhile late at night. It’s always wonderful. I don’t know where it comes from. There are no trains closer than five miles, but I guess that sound carries. Either that, or it’s the ghost of a train which once ran just down the hill from where I live.

When I was a kid I used to follow those tracks from Venice, once all the way into Culver City. The trains only ran once a month late at night to keep the access rights. Eventually, they gave those up but the rails remained for years afterwards, partially covered in blacktop in some places. They’re all gone now, alas.

There is so much that is gone. Venice is a highly urban place now but once was full of open fields, trains, horse stables. I’ve seen them all go in such a short span of time. A lifetime. Palimpsests. They’re everywhere I look, all over Venice.

Here’s one of my palimpsests: http://tinyurl.com/oa4z3mh 

May 28
“It’s the fire in my eyes,
And the flash of my teeth,
The swing in my waist,
And the joy in my feet.
I’m a woman
Phenomenally.”

Maya Angelou seemed immortal, but it was her glowing humanity that made her seem that way. Alas, if only. RIP.

May 30
pic.twitter.com/OX9CqMctxV This picture reminded me to send a b-day card to a friend. I may inhabit this skull but I don’t always understand it.

Jun 3
Sexism kills (maybe): http://tinyurl.com/p5rkuta 

Jun 3
It’s such a pain reading academic books on the Kindle that I’m going to order a paper copy and be done with it.

Random quote of the day:

“Lovers are like bees in that they live a honeyed life.”

—Graffito from the bar of Astylus and Pardalus, Pompeii

Disclaimer: The views expressed in this random quote of the day do not necessarily reflect the views of the poster, her immediate family, Siegfried and Roy, Leonard Maltin, or the Mormon Tabernacle Choir. They do, however, sometimes reflect the views of the Cottingley Fairies.

Random quote of the day:

“A first-rate scientist, or a fine prose writer, is able to say, ‘How can I know a good poem? I can tell an honest piece of work in my own field from a phony piece of work, but how can I tell a fine poem from a phony poem?’ And what has to be said to such a question is that these are people who cannot trust their emotional reactions, their total reactions.”

—Muriel Rukeyser, The Life of Poetry

Disclaimer: The views expressed in this random quote of the day do not necessarily reflect the views of the poster, her immediate family, Siegfried and Roy, Leonard Maltin, or the Mormon Tabernacle Choir. They do, however, sometimes reflect the views of the Cottingley Fairies.